Executive summary
The Covid-19 pandemic continues to impact heavily on all our lives and one of the long-lasting, but unanticipated, impacts is the emergence of Long Covid. Whilst many people infected by Covid-19 may fully recover, significant numbers will experience varied, ongoing and debilitating symptoms that last weeks, months or years following the initial infection. This prolonged condition has been given the umbrella term Long Covid. Recognition of Long Covid was accelerated by people-led advocacy groups such Long Covid Support.
3 Their Employment Group (LCSEG)
4 advocates for better support to stay in, return to or leave work well.
The Office of National Statistics (ONS) reported that, as of 1 August 2021, 970,000 people in the UK were experiencing self-reported Long Covid.
5 The most recent data from 2 January 2023, shows that this has increased to 2 million people
6 – this figure is bigger than the population of the cities of Birmingham and Manchester combined. Early research into reinfections
7 shows the risk of Long Covid is still present in subsequent infections, even if not experienced the first time.
This report summarises the findings of a self-selecting survey of 3,097 people with Long Covid in September and October 2022 on their experiences of work.
Overall, 60 per cent of respondents said they had been experiencing symptoms for over a year. Six in 10 respondents (63 per cent) told us that their ability to carry out normal day to day activities had been limited substantially and a further third (33 per cent) reported that their ability to carry out day to day activities had been limited to some extent.
However, there has been no targeted government action for people with Long Covid to be able to access and stay in work should they want to.
We have also witnessed some confusion on what legal protections people with Long Covid are entitled to and what employer’s duties are towards them, including whether people with Long Covid are protected under the Equality Act 2010.
People are deemed disabled under the Equality Act 2010 if they have a physical or mental impairment that has a 'substantial' and 'long-term' negative effect on their ability to do normal daily activities.
Whether someone meets the Equality Act 2010 definition of disability
10 would be based on the experiences of that individual. However, our findings indicate that many who responded to our survey would meet it, entitling them to protections and the right to reasonable adjustments. First and foremost, employers should support people in the workplace as it’s the right thing to do, but our results also raise concerns that, by not doing this, many employers could be acting unlawfully.
Both the 2021 and 2023 reports demonstrate clearly that too many people have been and continue to be failed by their employers, in increasing numbers. Many are key workers who kept the country running and yet have been faced with disbelief, negative treatment and a lack of support from employers and government. This report is vital to draw attention to people who have fallen out of work, are underemployed, struggling to remain in or return to work because of the virus.
If we do not take urgent action to ensure that people with Long Covid are properly protected and supported we run the real risk of new, long-lasting inequalities being created with damaging impacts on people’s lives, our economy and our public services, where many of these people are employed.
https://www.tuc.org.uk/research-analysis/reports/workers-experience-long-covid
https://www.tuc.org.uk/sites/default/files/2023-03/Long Covid at Work report - FINAL COLOUR 2.pdf