Symptoms subside

[Triumph]

Hmmm I think I probably would've opted for surgery after a year of steroids, though it must've been a tough call that I wouldn't like to have had to make, that said, the thought of surgery scares me shitless!. I can't imagine taking cancer drugs was much more fun than the steroids, but at least it got you to the point where you got the drugs that were helping I guess, sounds like a long road travelled.

i really do feel for you & your son, it's not a nice prospect even thinking that they may suffer the same problems, so fingers crossed that it isn't crohns, it may turn out to be nothing to worry about.

i was concerned that the extra gasses I'm putting into my body (and releasing!) may trigger something off, but I guess there's nothing to worry about there? At the moment it feels like I'm getting over a bad crohns flare up, don't know if its ciggie withdrawals or what, but I feel so drained I'm struggling to do anything at all from day to day without feeling completely exhausted, I'm hoping it passes or I may be tempted to go back to the ciggies as I can't function like this for much longer.

Yeah, stress has a lot to do with it (I find it stressful going for a colonoscopy and looking at the firemans hose reel and thinking shit, surely they're not going to use ALL that! ) I'm finding myself more stressed about silly things ATM, but I'm sure as my ciggie thoughts pass, so will that.

heres to bowel pleasing vaping!!!

TBH I opted for the surgery as at the time I was in a very bad place where I was taking steriods solid for a year at high doses as when I weaned off of them id have a flair up, I was at my wits end and although there were risks I could not go on as was. When I was on steriods for a prolonged period the side effects mood swings etc got worse and worse. I was also on slow release tramadol to the max I could take and still function day to day, these took me a year to get off of and had to go cold turkey whilst away working (basically didnt take them with me).

They told me I should take pentasa as they might help but after 4 mths and them doing nothing I stopped and the doc still said I should but I explained they did nothing and I have side effects so I will not be taking them.

Arthritis like Crohns is a auto-immune diesease so could in some respects be related.

Qualifying for the drugs meant that I had to have tried 4 other drugs (most of which were cancer drugs and tbh was a nasty ride). Then they ask you in for a accesment which involves seeing what ya joints are like for pain whilst you are taking your drugs. Then a month later without taking anything if you are able to show pain in several joints and have tried other drugs then you pass.

My sons suffering was a heavy blow and one that hits me often, even as I write this I cannot help but fear the worst. He is undiagnosed at the moment as he had a few new non-invasive tests that they can do and he was borderline for a inflammatory bowel problem next steps were scopes. We tried to negate certain foods with me and my knowledge as a guideline and it did negate alot of his symptoms so we have him under the specialists but have a open appointment for a year which we can extend for another. His symptoms at present are a little worse but not as bad as they were.

Incedently like me when his symptoms subsided he also put weight on. So it is very like me in all regards so I dont not hold much hope that it will be a negative for crohns tbh and knowing how it can be to live with is where it hits you hard.

Vaping id say have taken me back to almost a year prior with my symptoms as it has been a very gradual worsening but this in all honesty is all I can put it down to my life is a little bit stress free which as you know will also help but I would hold my hand up and state that vaping has done wonders for me and I personally hope that it will continue to reverse the problems I have been having building. I know you could argue that giving up smoking would have also done the same but there is so much I have given up because of my problems that it was my last and only sin.

 

[SouthernVaper]

It was that bad that opting for surgery was a easy option. When you are that bad the prospect of what could hapen is nothing compared to what is happening. Yes its been a long road travelled and not one that I am finished travelling lol

Gasses wise the only effect it has had on me is fruity releases (as I vaoe fruit flavours im guessing) lol

Ciggies IMO wont help the flare up.

I am at a point now where I am refered back to the GP as everything is basically under control with just a 3 monthly blood test, when I remember. Always getting told off for not getting bloods done regular lol.

Even when it does flair up it dont beat me never has many a person would be signed off and on disability benefit with what I have and still do suffer. Arthritis now is a constant issue and also a constant pain which I do not take pain killers for as I am not getting addicted again, but as said it is manageable.

You need to chill bud and if ya ever want to share stories or experiences please do message me.

I agree VIVA VAPING

Hmmm I think I probably would've opted for surgery after a year of steroids, though it must've been a tough call that I wouldn't like to have had to make, that said, the thought of surgery scares me shitless!. I can't imagine taking cancer drugs was much more fun than the steroids, but at least it got you to the point where you got the drugs that were helping I guess, sounds like a long road travelled.

i really do feel for you & your son, it's not a nice prospect even thinking that they may suffer the same problems, so fingers crossed that it isn't crohns, it may turn out to be nothing to worry about.

i was concerned that the extra gasses I'm putting into my body (and releasing!) may trigger something off, but I guess there's nothing to worry about there? At the moment it feels like I'm getting over a bad crohns flare up, don't know if its ciggie withdrawals or what, but I feel so drained I'm struggling to do anything at all from day to day without feeling completely exhausted, I'm hoping it passes or I may be tempted to go back to the ciggies as I can't function like this for much longer.

Yeah, stress has a lot to do with it (I find it stressful going for a colonoscopy and looking at the firemans hose reel and thinking shit, surely they're not going to use ALL that! ) I'm finding myself more stressed about silly things ATM, but I'm sure as my ciggie thoughts pass, so will that.

heres to bowel pleasing vaping!!!

 

[Triumph]

Yeah, I guess it comes to a point when enough is enough, but for me it'd still be a tough call.

as for fruity releases, my dad (with colitis) can clear a room in 5 seconds, I remember as a kid being astonished and somewhat disgusted at how something could smell THAT bad!! Now I'm in the same boat, but to make it worse, following on from my discectomy I have cauda equina syndrome, which means I can't feel hardly anything around my bum, so my stinkers often take me, and whoever I'm with by surprise! Not good in company!

i know what you mean about forgetting blood tests! I often try to bluff the gastro that I have had them, but I think they're onto me!! Which reminds me I have to have one done this week....

im of the same mind as you, if I physically can go to work, I will, I think just festering at home wouldn't help matters and if anything I'd just ending up feeling worse. Though if you do have to take any sizeable sick time from work, I was informed you are covered by the disabilty discrimination act, that is if you're employed rather than self employed.

Yeah pain killer addiction isn't great either, after my back op they gave me a bin bag (literally) of painkillers, mostly tamazepam, thankfully I managed to come off them pretty quickly and binned them (now I'm wishing I peddled them to pay for vaping gear!!) but I imagine its very difficult with arthritis, I wouldn't like to imagine what that's like.


i WAS just relaxing, now my protank has decided it wants to give me bonfire taste aaarrrggghhh fkn thing!

It was that bad that opting for surgery was a easy option. When you are that bad the prospect of what could hapen is nothing compared to what is happening. Yes its been a long road travelled and not one that I am finished travelling lol

Gasses wise the only effect it has had on me is fruity releases (as I vaoe fruit flavours im guessing) lol

Ciggies IMO wont help the flare up.

I am at a point now where I am refered back to the GP as everything is basically under control with just a 3 monthly blood test, when I remember. Always getting told off for not getting bloods done regular lol.

Even when it does flair up it dont beat me never has many a person would be signed off and on disability benefit with what I have and still do suffer. Arthritis now is a constant issue and also a constant pain which I do not take pain killers for as I am not getting addicted again, but as said it is manageable.

You need to chill bud and if ya ever want to share stories or experiences please do message me.

I agree VIVA VAPING

 

[SouthernVaper]

Yeah, I guess it comes to a point when enough is enough, but for me it'd still be a tough call.

as for fruity releases, my dad (with colitis) can clear a room in 5 seconds, I remember as a kid being astonished and somewhat disgusted at how something could smell THAT bad!! Now I'm in the same boat, but to make it worse, following on from my discectomy I have cauda equina syndrome, which means I can't feel hardly anything around my bum, so my stinkers often take me, and whoever I'm with by surprise! Not good in company!

i know what you mean about forgetting blood tests! I often try to bluff the gastro that I have had them, but I think they're onto me!! Which reminds me I have to have one done this week....

im of the same mind as you, if I physically can go to work, I will, I think just festering at home wouldn't help matters and if anything I'd just ending up feeling worse. Though if you do have to take any sizeable sick time from work, I was informed you are covered by the disabilty discrimination act, that is if you're employed rather than self employed.

Yeah pain killer addiction isn't great either, after my back op they gave me a bin bag (literally) of painkillers, mostly tamazepam, thankfully I managed to come off them pretty quickly and binned them (now I'm wishing I peddled them to pay for vaping gear!!) but I imagine its very difficult with arthritis, I wouldn't like to imagine what that's like.


i WAS just relaxing, now my protank has decided it wants to give me bonfire taste aaarrrggghhh fkn thing!

gotta hate the burnt juice taste I had carto block without realising mouth full of hot juice whilst driving not good at all.

I say mouthful was a few bits really.

I think the solution to your releasing of pungent gas and not knowing is

Get a dog.................................blame the dog problem sorted.

 

[Triumph]

Hahah yeah, we have the most flatulent cat in England If I'm to be believed!!!

 

[SouthernVaper]

knew it was the cat, you can imagine what its like in my household son is always on the trumpet and so am I.

But
that dog stinks

 

[Senor Stuff]

Glad its not mate as wouldnt wish it on my worst enemy.

I wasn't glad it wasn't, as it means I'm still effectively undiagnosed and left on meds until they decide to look for something else. They say it's Chronic Abdominal Pain Syndrome, which is just them shrugging their shoulders.
Had my gall bladder removed in case it was that, every test imaginable and still no closer. So 5 years on I still have debilitating nausea, chronic ab pain, trots for 5 years, agoraphobia and depression as a result of the symptoms, and take 15 tablets a day that only help take the edge off. An that's before I try to face the added symptoms of withdrawal when I finally stop these meds, already had issues when codeine and amitryptyline ran out. Sigh

 

[SouthernVaper]

I wasn't glad it wasn't, as it means I'm still effectively undiagnosed and left on meds until they decide to look for something else. They say it's Chronic Abdominal Pain Syndrome, which is just them shrugging their shoulders.
Had my gall bladder removed in case it was that, every test imaginable and still no closer. So 5 years on I still have debilitating nausea, chronic ab pain, trots for 5 years, agoraphobia and depression as a result of the symptoms, and take 15 tablets a day that only help take the edge off. An that's before I try to face the added symptoms of withdrawal when I finally stop these meds, already had issues when codeine and amitryptyline ran out. Sigh

Oh not so good then matey............... mine was left undiagnosed for some time as it wasnt A typical ie my blood tests always looked fine.
After a visit to A&E followed by a further visit 4 days later in a ambulance they decided it was my appendix and took it out. I went home had a sandwich and was back in a ambulance again.

They then did a be-arum follow through this involes x-rays and 1ltr of god awful stuff that you drink and they keep x-raying and looking at whats happening. Whilst doing this they went live which means they don their lead aprons and constantly x-ray whilst moving the bed type thing your on and the machine. This is how they found what was going on for me. All other tests came back negative and they kept saying IBS. I even paid £130 to go private as I couldnt wait 3 mths to see someone and after 5mins and what was a slight prodding around they said IBS.
The doc actually said id be very surpeised if it wasnt IBS, I was going to ring the twt and just shout "Suprise" but never did

 

[Senor Stuff]

Oh not so good then matey............... mine was left undiagnosed for some time as it wasnt A typical ie my blood tests always looked fine.
After a visit to A&E followed by a further visit 4 days later in a ambulance they decided it was my appendix and took it out. I went home had a sandwich and was back in a ambulance again.

They then did a be-arum follow through this involes x-rays and 1ltr of god awful stuff that you drink and they keep x-raying and looking at whats happening. Whilst doing this they went live which means they don their lead aprons and constantly x-ray whilst moving the bed type thing your on and the machine. This is how they found what was going on for me. All other tests came back negative and they kept saying IBS. I even paid £130 to go private as I couldnt wait 3 mths to see someone and after 5mins and what was a slight prodding around they said IBS.
The doc actually said id be very surpeised if it wasnt IBS, I was going to ring the twt and just shout "Suprise" but never did

I've had one of those tests where you drink stuff and they constantly x-ray you, didn't show anything. I'm a medical mystery

The only thing that has helped, well mentally, was having a tattoo done. It gave me something tangible that I could focus my aggression on and everyone said it helped my moods a lot.
http://instagram.com/p/Ye2OF3gWYu/

 

[SouthernVaper]

lol nice tat mate. Hope they find wtf is going on for ya soon buddy